5. The emergence and potential of a rights agenda for unpaid/family carers: the roles of state actors, carers’ organisations and international agencies 

Sue Yeandle, CIRCLE, Faculty of Social Sciences, University of Sheffield

Kate Hamblin, CIRCLE, Faculty of Social Sciences, University of Sheffield

This panel will explore the emergence, progress and potential of a rights agenda for unpaid / family carers (people supporting a relative or friend) and the roles played in achieving this by state actors, carers’ organisations and international agencies. Papers may focus on:

  • Concrete developments in policy and practice, e.g. legislation, treaties or formal agreements at the international, national or sub-national levels, or carers’ strategies or policies developed with / targeted to the wellbeing and rights of carers. Papers could include discussion of how these developments were achieved, whether they have been successfully implemented, and their impact on carers / those they support.
  • The claims-making of organisations representing the interests of carers; papers could focus on the nature of the claims made and alliances forged to press for legislative or policy change and protect carers from unfair treatment, discrimination and social exclusion.
  • Barriers to progress in establishing rights for carers: papers might discuss barriers arising from: challenges in identifying, defining and recognising carers; the complexity and transient nature of caring roles; the social invisibility of caring within families/households; weaknesses in support for carers in particular groups / marginalised communities; the low priority given to support / services for carers and those they assist.
  • Examples of problems or progress in specific areas of carers’ lives, in one country or a group of countries. Papers could focus on carers’ rights to: recognition; social protection; paid employment / time off work; choice in how, where and for whom they provide care, etc.
  • Specific challenges faced by carers in claiming their rights in conjunction with other forms of discrimination. Papers might focus on: difficulties carers face in securing their rights in transnational caring circumstances; carers in LGBTQIA+ communities; or challenges faced by people in co-caring situations (where carers also have health or disability-related support needs).